Providing Lifelong Care for Neurofibromatosis Patients
Clinical Trials
Clinical trials are research studies that involve people. The main purpose of a clinical trial is to find a better way to prevent, diagnose or treat a disease.
About our Program
The Comprehensive Neurofibromatosis Clinic at UT Southwestern Medical Center, in conjunction with the NF Clinic at Children’s Medical Center Dallas, offers expert diagnosis and treatment for each type of NF from childhood through adulthood. We have state-of-the-art technology, cancer screening services, and subspecialists with the experience and background to meet the particular needs of NF patients.
We are also committed to both providing and developing new treatments for NF patients at each stage of their lives and disease. Our team approach gives the added benefit of consistent care for NF patients throughout their lifetimes.
Conditions We Treat
The NF Clinic treats patients with all three types of neurofibromatosis: neurofibromatosis type 1 (NF1), neurofibromatosis type 2 (NF2) and schwannomatosis. Although these share the name of neurofibromatosis, they are unique disorders with different symptoms and presentations. There is no proven medical treatment to cure neurofibromatosis, and clinical follow-up is critical. The NF clinics at Simmons Cancer Center and Children’s Medical Center of Dallas provide state of the art medical technology, cancer screening services and therapies.
The NF Clinics at Simmons Cancer Center and Children’s Medical Center are also in partnership with the Texas NF Foundation for patient and parent support.
Treatment Options
UT Southwestern Medical Center is a place where physicians and scientists work together every day to turn discoveries into innovative therapies. It’s unique among medical centers in North Texas.
A close partnership with the basic science laboratories at UT Southwestern that are focusing on NF research is already yielding promising discoveries. A 2008 study revealed a link between the growth of plexiform neurofibromas, which are large complex tumors that occur in 25-40% of NF1 patients, and the immune system. Their success spurred a second phase of the study in people with neurofibromatosis, which is now underway.
To learn more about the diagnosis and treatment of neurofibromatosis, spend some time in our Cancer Information library. If you have questions, be sure to talk with your physician or another member of your clinical care team.
Meet our Team
Get to know the physicians who comprise the Neurofibromatosis Team.
Our Location
Seay Biomedical Building
2nd Floor
North Campus
UT Southwestern Medical Center
2201 Inwood Rd
Dallas, TX 75390
Phone: 214-645-HOPE(4673) or toll-free at 866-460-HOPE(4673)
View the printable UT Southwestern Visitor Guide for a campus map and detailed parking information. (Opens a new browser window.)